An Off Day

I will be posting hopefully very soon about our Bays Mountain Trip. However, for now, I want to just take a moment and describe a bit about what our day has been like today. As any parent would say with a special needs child, we really do not have a "typical" day because you  never know what is going to come up. When we start a more organized school day, then things will be a bit more predictable although never completely.

I started off the day with Lillian waking me up by "fussing" at me for getting on her pillow. Then I slowly woke up and realized that I was sandwiched in between Aidan and Lillian in Aidan's bed. Aidan was lying crossways taking up the entire half of the bed so I could not get on his pillow, but Lillian decided to be possessive of HER pillow. I did the smart thing and just got up for the day instead of pressing the issue. I have learned to pick my battles and this was NOT one I was going to argue over!

Finally, Lillian decides she has to go to the bathroom so I took her. Aidan meanwhile was still asleep. I sat down with Lillian and worked with her on eating her breakfast. Then she asked for some cheese, so I gave that to her. I cleaned house in which Lillian decided to drag things OUT while I was doing this. Meanwhile, Aidan is STILL asleep despite noise, trips into his room and light. Lillian is very impatient on things and when she wants something, it has to be NOW. She will hang on me, whine, and constantly bother me until she gets it. More on that later... we are working on trying to get her to understand she is NOT the only child that I have.

Aidan got up and stayed up for about 10 minutes and then went BACK to bed... in my bed this time and insisted the lights be off. He complained of a headache and did not want the light on. He stayed in bed until around 1:15pm. At some point, I decided to feel of him. He felt hot to me, but I am cold always and could not tell if it was from just being covered with a blanket which he insisted upon despite the hot weather right now. I took his temperature under his arm as I just did not want to bother him with the rectal. It read 96 so I did decide to check the temp rectally which was 99 but that isn't too bad so I just let him sleep. He did get up, but having a VERY "off" day. He is repeating things constantly today and even stuttering. The repeating is normal, but the stuttering is not so normal for him. He also insisted today that he could not wear anything blue today. I asked why and he says I just can't. Blue is not a color for today. So Okay! I can go with that considering he only has one blue shirt and most do not have blue on them. Aidan kept insisting that he was going to a fire at my  mom's house tonight and still can't figure out what he is talking about!!!! Eye contact has been less today as well. Lillian threw his Froggy under the bed and screaming, crying, throwing himself in the floor was his reaction to this. I picked him up off of the floor and tried to explain that we can GET Froggy then tried to explain to Lillian (who is not understanding what I am trying to tell her) that she cannot throw Froggy under the bed, nor throw Froggy anywhere and Aidan is very attached to it.

Lillian has bothered Aidan all day long doing things just like this. She has also been hitting on the computer, throwing the phone, screaming at Aidan, etc etc etc. Then when she does these things, Aidan gets really upset and starts the screaming and yelling. Overall, just a very "off" today in which I had to get both of them ready to go, extra clothes for everyone, pull-ups, medicine, "good milk" (Lillian drinks this for nutrition and growth), sippy cup, shoes etc. In a bit, they are all going to my  mom's house to stay while I head to a movie with a family friend and her daughter and friend.. ALONE! WITH NO KIDS!!!

How did I manage this?!?! Honestly, I am not sure besides the fact I just told my mom that I WAS going, told my husband that I WAS going and got Bethany to get the tickets online in which then no one could say I couldn't go. Sneaky?!?! Yes, but necessary! So I know you probably think I am NUTS by now for being SO EXCITED... no ECSTATIC.... for getting to just go to a movie with friends. However, as a mom of special needs kids, I don't get to do this... EVER! I don't ever get to go really anywhere alone or do anything fun alone. I love my children and devote my life to them, but sometimes, everyone needs a moment to themselves. It is called sanity time!

Sooo... I am ending today with this: I am heading out! Taking the kids to my mom's, meeting up with good friends and for the night... I am NOT going to think about medical, developmental, medicines, behavior or anything else relating and I AM going to go and have some FUN! Stuff myself with popcorn with extra butter, enjoy a meal with NO INTERRUPTIONS from kids, and see ECLIPSE AT THE IMAX THEATER!!!!

Au Revoir!